Posts Tagged ‘organ donor’

We honor them…

Friday, March 1st, 2013

 

Unyts is paying tribute to our heroes of organ, eye and tissue donation. It seemed fitting to call this new endeavour “Honoring our Heroes”. We know that for the families of these donors, they really are heroes, and we certainly feel the same way.

We are truly honored to share these very touching personal stories each month. If you would like to honor a hero, please read below. 

The month of March, we honor   …

Tinna Diebel

 

From the time she was a little girl, Tinna was a little chatterbox. She would not be quiet from the time she got up till she went to bed. When she started kindergarten, we would get notes home all the time saying how talkative she was. Her teacher called her a  little social butterfly. She would go from desk to desk talking to people.
 
When she was four, she went through the “why” stage. Everything was “why?” My answer was always because. That never satisfied her. So as she kept asking, I would ask her, why do you want to know? When she was a little girl, she loved to watch Barney, The Rugrats and The Big Comfy Couch. She would sit at her little yellow desk and have breakfast. She loved to play outside with her red wagon, sandbox and her little pool. Her uncle Steve would take her for rides on his 4 wheeler. Her grandma Joanie remembers a funny story that happened when she took Tinna to the grocery store. She picked up an eggplant and told Tinna what it was, and Tinna replied, “where is the egg?”. It’s a story that they laughed about for years.
 
There are so many memories. I think my favorite memory is the day she called me mommy. I will never forget it. She was four and I had her sitting on the counter. I forget what we were doing but out of the blue, she asked if she could call me mommy. We were in the middle of a custody fight and she was living with us. I looked at her and said “do you want to call me mommy?” and she said “yes”. I said yes you can, and from that day on I was her mommy. For 15 wonderful years I was her mommy. She was 19 and still called me mommy.
 
There was another time when I was pregnant with her sister Sabrina. We were living in an upper apartment and my husband worked for a furniture company. I here this noise coming up the stairs. He opens the door and she has this huge dresser. I asked him who it was for and he said Bubba. That’s what he called Tinna. It was late and she was sleeping. I had to get her out of bed and put her in our bed so he could set it up for her. She got up the next day and let out a bid squeal. She thought it was the most beautiful thing. We said it was her big girl dresser. She felt so special.
 
She also helped name her sister Sabrina. We had the name all picked out. At the time, Rosie O’Donnell had her talk show on and Tinna just loved to watch it. One day we were watching it and she said, mommy, if the baby is a girl, can we name her Rosie? She was 6 at the time. We wanted her to feel like she was a part of the pregnancy so I said, “honey, we already have a name picked out”. She was so disappointed. I said, let me talk to daddy and see what we can do. Sabrina’s name is now Sabrina Elizabeth Rose Diebel.

One day, I believe it was around 2007 or 2008, my uncle and his then fiancé brought over three cans of whipped cream for the girls to have a whipped cream war with. They had a blast. Tinna and Sabrina went after each other like crazy and little Caitlyn was trying to keep up with them. They had cream all over them but they had so much fun. Tinna loved to play dress up with her sisters. They even had special tea parties at the dining room table.

Tinna loved to have fun, especially at school dances. Tinna and her friend Theresa would be the first to run out to the dance floor and get everyone else to start dancing too. Theresa remembers going to the playground after school with friends, taking pictures and just having fun. Tinna would climb up the rock wall and just stare up at the sky, thinking, “I wonder what it’s like up there.” We know that Tinna is up there, an angel watching over us.

She enjoyed visits to her grandparents in South Carolina. Her Papa Jim and Grandma Joanie will always cherish their time together with Tinna and her sisters, visiting the beach, candystore and art gallery.

Our beautiful daughter Tinna was just 19 years old when she died.  She was a sweet, caring, outgoing girl who didn’t have a mean bone in her body.  She never realized how many people truly loved her.  She was taken from us on November 14, 2009.  She died due to head trauma she received the night before when she was struck by a car while crossing the street while she was walking home from work.  In January of 2009, she graduated early from high school, a goal that she had set for herself.  In July of 2009, she started dating a boy from high school. She said he was the love of her life.  Things were going so well for her.  She had a job that she loved, she had finally found a great guy and she was going to attend college that fall to be a teacher.  She finally found something that she wanted to do with the rest of her life.  She found she loved working with kids.  She started working at a daycare in Jan 2009 and fell in love with the kids.  She wasn’t expecting to like it as much as she did.  She wanted to be a reading teacher.

At home, Tinna was the oldest of 3 girls.  At the time of her death, her sisters were 12 and 8.  She loved her family so much.  No one could hurt her sisters.   She truly was their “big sister”.   She was always there for anyone when they needed her.   She had so many friends.   She was always on the phone listening to their problems and helping them out.  When Tinna got her driver’s permit, she made the decision all on her own to be an organ donor.   Her thoughts were when she did die, she wasn’t going to need them anymore so why not give them to someone who needs them. When the doctors told us that she was not going to make it, the decision was a no brainer.  We had to go along with her wishes.  The people from UNYTS were so kind and caring.  They knew what a terrible time it was for us.  I know we made the right decision.  There are so many people who got a second chance at life because of our daughter who made the decision to donate.
 

*If you would like to nominate a hero of organ, eye or tissue donation, please fill out a form (click here). We will be sharing these stories each month on Unyts blog and on our Donor Family Services page.

 

 

Katie’s Star Golf Fundraiser

Monday, July 9th, 2012

Honoring our Heroes

Monday, June 11th, 2012

 

 

We are starting something new here at Unyts, to pay tribute to our heroes of organ, eye and tissue donation. It seemed fitting to call this new endeavour “Honoring our Heroes”. We know that for the families of these donors, they really are heroes, and we certainly feel the same way.

We are truly honored to share these very touching personal stories.

Branden Edward Baker

Branden Baker was just 17 when he gave the gift of life and became an organ donor. His family is dedicated to keeping his memory alive through the message of organ donation. This loving and caring teenager will never be forgotten. His parents share their very personal stories of Branden.

Submitted by Gail Bowden (Branden’s Mother)

I think about Branden every day.  I remember his smile, his joy for life, his love of people (especially babies), his love for animals, and his love for family & friends.  I bought my kids cell phones when they were teenagers.  I called Branden the stalker because he loved to call people.  He never had a whole lot to say he just like to call and say hi and ask what various people were doing at the moment he called.
He used to call me at work 5-6 times a day and ask how I was and when I was coming home.
I used to take Branden to the SPCA to visit the cats.  Branden loved animals – well the furry kind – he was NOT fond of snakes or insects!
We used to go to the SPCA and go into the cat room – where all the cats roamed free.  Branden and I would sit and talk to the “kitties” (as Branden called them) for over an hour.  It would take a few minutes for the cats to get used to his chair but once they did there was not stopping the cats from jumping on his lap for some love.
I remember the joy on Branden’s face when I surprised him!  On his 10th birthday I ordered a limo to come to his school to pick up him and his friends and drive them around for an hour before bringing them to my house for a party.  Branden knew I was picking up him and his friends so I came to school just as the buses were pulling away from the property and Branden, his friends, his teacher and many other teachers from the school were walking out together.   The limo was behind the school buses and as the buses drove around the circle to leave the limo pulled up in front of the school.  I had told the parents of the kids coming to the party that a limo would be picking them up so they ran excitedly to the limo and began getting in –Branden was so excited but nervous and began telling the kids to get
out of the limo, because he was only one who didn’t know it was for him!  I walked up to Branden and whispered in his ear that the limo was there to drive him and his friends home. The joy and surprise that was shining on his face was something I will never forget!  He hugged me so hard he almost hurt me. “I love you mom.  I love you mom.”  He kept saying to me as he hugged me. When he got in he said “this is my best birthday ever!”
On Branden’s 15th birthday I got him a hummer limo – school was over by this time for Branden so I had it pick him up at home and we drove to his cousins’ schools to pick up them!  He loved riding in the limo with the lights in the ceiling, and the leather wrap around seats, the radio, and his cousins.  He loved to share his joy with others.
Branden was always a loving child.  He cared about everyone and had so much love – which he gave out all the time.  I talked to him a few times about hugging strangers and told him it was important to give people their space – to ask if it was ok to touch their pets or hug their babies.  I think he just had so much love he had to give it out or burst!
Branden did not have an easy life.  He had spina bifida which confined him to a wheelchair his whole life.   He had 17 surgeries over the course of his life to implant or replace shunts in his head, to put tubes in his ears, to try to correct his vision and his voice, to lengthen one leg which was slightly shorter than the other, to release muscles and tendons in his legs which the contractures pulled too much, untether his spinal cord when it became difficult to even crawl, decompression surgery – to remove a piece of his skull in the back which was putting pressure on his brain stem, and surgery to make catheterizing himself possible.  Branden hated being in the hospital –his dad and I made sure he was never alone.  One of us was always there with him the entire time.  Usually it was me.  I would bring
books and read or watch TV while Branden was in surgery and sleep next to his bed (sometimes on the floor or under his bed – when he was in intensive care).  He was never alone.  We went with him into every surgery until he fell asleep and one of us was with him in recovery when he woke up.  Branden loved to LEAVE the hospital!  He hugged all the nurses who took care of him and smiled and waved to everyone.
Branden was a joy to our family and a treasured friend to many.

His legacy of love – love of family, friends and life lives on through all of us who knew him.

This next story about Branden is submitted by Lance Baker, proud father of Branden Edward  and Bryan Patrick Baker.

Branden was young, maybe 8 years old, when he went on his first camping trip to Cayuga Lake State Park. The entire family would get together in July and get adjoining campsites on the same road. We would get 5 or 6 of these sites to hold everyone and their camping supplies. The very first night of Branden’s first camping trip it rained so hard that Branden’s brother Bryan was scared and wanted to sleep in the back of the SUV we had. I assumed that Branden would join Bryan and I, but to my surprise Branden replied “No, I want to stay here in the tent with Grandma!” Branden was adamant about staying with Grandma and protect her from the rain. While no rain entered the tent and everyone was fine the next morning , Branden was so proud that he stayed in the tent and made sure Grandma was ok. This is how Branden was, he wanted everyone to enjoy themselves and was happy that others were happy.  He was so unselfish and so caring of others that he was an inspiration to everyone who knew him.

Branden was never able to walk and he used his wheelchair to go where he wanted. From the seat of his wheelchair Branden could move the world and have such a powerful influence on the hundreds of people he met during his short time he had. I truly believe that Branden was sent to us from heaven above to show us all how to better treat our fellow human beings and how to be happy with the little things that life has to offer.

It’s been over 4 years since Branden left us. Not a day goes by that I don’t think about him and what an amazing young man he was.  I take comfort in knowing that even after his passing his legacy continues to touch the lives of so many people.

 

A Poem for Branden…by Gail Bowden

He loved yellow
And kitties
and volkswagon beetles

He loved his family
His friends
and hugged everyone

His smile was bright
and ready
and lit up his face

We have pictures
and stories
and memories to share

Those who knew him
Loved him
So many cared

We go on without him
Together alone
Yet feel him with us

He gave strangers LIFE
and SIGHT
and STRENGTH
………..HOPE

 
He is my son
Branden

 

If you would like to nominate a hero of organ, eye or tissue donation, please fill out a form (click on the link below). We will be sharing these stories each month on Unyts blog and on our Donor Family Services page.

Honoring our Heroes

Multicultural Transplant Organization Comments on “Facebook” New Timeline Feature

Monday, May 14th, 2012

On May 1st, Mark Zuckerberg announced a new “Organ Donor” feature on Facebook. You can now share with your family, friends and the rest of the social network your donor status. This is the response by Sandy Shih Andrada, the President of Multicultural Affairs in Transplantation.

On behalf of the Association for Multicultural Affairs in Transplantation (AMAT), we applaud Mark Zuckerberg and Facebook for elevating the vital importance of organ and tissue donation among its millions of users . The increased transparency into one’s status as a registered organ and tissue donor will surely spark lively discussions regarding the decision to donate and save lives. Indeed, this discussion is especially timely within the African American community, which suffers disproportionately from myriad health disparities (high blood pressure, diabetes) that can lead to end-stage organ failure. Yet, there continues to be a widening gap in the percentage of African Americans saying “yes” to donation and those in need of life-saving transplants. This trend can also be seen in other multicultural communities. We have already noted an exponential increase in the number of people signing up to become donors on the heels of the Facebook announcement May 1st; our hope is that we will see more communities of color exploring the possibility of organ and tissue donation, making their donation decision and sharing their decisions with their families, friends and loved ones.

Sandy Shih Andrada
President, Association for Multicultural Affairs in Transplantation (AMAT)

Facebook Feature Spurs Organ Donor Registry to Climb here in NY

Thursday, May 3rd, 2012

Earlier this week, Facebook founder Mark Zuckerberg announced that users can now declare their “Organ Donor” status on their timeline of their Facebook page.

That Facebook announcement caused quite the spike in enrollments nationwide, including here in New York.

 Typically, NY has been averaging about 17 online enrollments per day, and on the announcement day, we had 754, an increase of 4394%!

If you’d like to share your “organ donor” status, it’s easy…(just click below)

 

 

 

 

The Gift of Life

Wednesday, May 2nd, 2012

At Unyts, we know how important it is to become an organ donor. One single donor can save or enhance the lives of up to 50 people. Now, the rest of the world is beginning to see how easy it is to save a life.

ABC’s Nightline aired a special program on transplants following the announcment by Facebook that you can now add “organ donor” to your timeline. The Nightline crew spent a considerable amount of time at Mayo Clinic in Rochester, Minnesota over the past couple of months interviewing physicians and patients.

If you missed the program, take a few minutes out of your day to watch these 2 segments from Nightline and see why it’s so important to sign the organ donor registry.

Watch the entire Nightline episode:

 

 

Facebook Hopes to Save Lives!

Wednesday, May 2nd, 2012

 

 

 

 

This is a very exciting time for Unyts and organ donation organizations across the country. Facebook has partnered with Donate Life America to save lives!

We know that over 114,000 people are awaiting organ transplants right now…

 Facebook users can now share their decision to be an organ, eye and tissue donor on Timeline. 

**Go to Timeline, click on “life Event,” select Health and Wellness,” choose “Organ Donor.”  And make sure to click on the “Officially register” link to make your decision to be a donor official by registering.   It’s that easy!

Or click here to watch an instructional video on how to let the world know you are a committed donor on Timeline.

Share this information with everyone you know and remind them to “like” the Donate Life America Facebook page, once they’ve checked their donor status on Facebook or through their state registry, if they have not officially registered in their state.

Watch Mark Zuckerberg’s interview with ABC News

Donate Life Challenge

Monday, April 23rd, 2012

This summer take part in an exciting and life-saving competition by entering your company in the 2012 Donate Life Challenge. Businesses from all over WNY will compete for points through hosting and supporting a variety of activities at their workplace.

Did you know that 1 pint of blood can save up to 3 lives?

It’s challenging to get blood donors during the summer months. Unfortunately, this is the time of year when we need donors. Our local hospitals have an increased need for blood and Unyts is the primary supplier to blood products for Kaleida Health (including Buffalo General and Women and Children’s Hospital) ECMC, and all the hospitals in Niagara and Wyoming Counties.

Unyts is also the only organ procurement organization in WNY. Sadly, the number of people who are committed to become organ donors is low here in NY State. Businesses can give their employees the opportunity to sign up for the Organ Donor Registry by hosting a registry drive. 

The Donate Life Challenge fosters corporate camaraderie and employees can win prizes like concert tickets, Bisons Tickets or a Moondance Cat cruise.

Businesses will have the opportunity to showcase their good will through social media. The Unyts Marketing team will put photos on Facebook, Twitter, the Unyts website and Unyts Newsletter, which has a distribution of around 20,000 email users.

Contact: Amity Mann @ 512-7956 or amann@unyts.org

Thank You Pano’s!

Thursday, April 5th, 2012

Be sure to stop by and support this local business. You’ll be supporting Unyts at the same time!

WNY Gives the Gift of Life

Wednesday, April 4th, 2012

Daniel’s Story

Each week during “Donate Life Month”, we will be sharing personal stories about organ donation. The stories are submitted by families who have worked closely with Unyts following the death of a loved one. Take a few minutes to read this very personal story of love, peace and an amazing gift of sight…

The story I am about to tell you is one of redemption and healing

Daniel and I married young and spent the next 35 years growing up together.  He was the father to Kelly and Nathan, grandfather to Sierra, a loving brother, friend to many, and finally, at the end, a corneal donor whose gift has given sight to two people whom I will never know. 

When I consented to donate Daniel’s eyes to Unyts, it was with the hope that someday somewhere I would encounter a person who would look at me out of his eyes.  I missed him so horribly that I used that fantasy to sustain me for months on end. 

After battling heart disease and diabetes for years my husband, Daniel, died suddenly in April of 2010.  When his heart stopped my heart broke.  I spent many hours waiting at his side for family to gather, and to let him go.  It was late that night when I returned home.  The phone rang as condolence calls came in.  One last call came at almost midnight.  It was a lovely woman from Unyts; I wish I could recall her name. Daniel had always said that he would want to be a donor.  The woman expressed her sympathies, her voice soft and sincere. She and I discussed the donation options and ran through the list of possibilities. Due to Daniel’s many health problems, I thought he might not be able to be a donor after all.  At last it was determined that Daniel’s warm and mischievous eyes, his eyes that danced and laughed, would be given either for transplant or for research. 

That woman from Unyts started me on my way to stepping through the grief and into healing.  She touched me with her kindness and conviction and presented the opportunity for Daniel to gift as he had intended.

Unyts thanked me for the donation and offered support, and I would like to express gratitude to Unyts now for the gift of healing they gave me.  Bless you. Thank you.

-Gloria Sadowski