Posts Tagged ‘Cystic Fibrosis’

The fight to live…

Thursday, January 24th, 2013

Bill Mahaney is one of 30,000 people in the United States diagnosed with Cystic Fibrosis. Mahaney, a double lung recipient from Western New York, writes about how he lives with Cystic Fibrosis and how having an organ transplant at age 52 gave him a new lease on life. His book, “The Fight of My Life”, is a timeline of his life with Cystic Fibrosis. A portion of the proceeds will benefit the Lung Center at Women and Children’s Hospital . 

Here’s an excerpt from his book, The Fight of My Life“ 

“It’s my wife’s and my 8th wedding anniversary. We have our first appointment with the Cleveland Clinic in Cleveland, Ohio. I am being evaluated for a double lung transplant. I am 48 years old. My daughter, Mikaela is five years old now. She was extremely excited as she was going to spend the next two days at her grandparents’ home and she got to pack her own Disney Princesses suitcase. She has no clue what is happening with her daddy, for her it is an adventure to her grandparents. At five years old that’s exactly what she should think of these next two days, for me it is much, much more.”

Click here to read more of “The Fight of My Life”

*According to the National Library of Medicine, Cystic fibrosis is a disease that causes thick, sticky mucus to build up in the lungs, digestive tract, and other areas of the body. It is one of the most common chronic lung diseases in children and young adults. This collection of sticky mucus results in life-threatening lung infections and serious digestion problems. CF presents daily challenges for approximately 30,000 Americans. But life with the disease is far different today than it was 50, 30, or even 10 years ago. Perhaps the best evidence that many people with cystic fibrosis are living longer is the fact that more than 45 percent of the CF patient population is now age 18 or older. 

WNY Gives the Gift of Life

Wednesday, May 2nd, 2012

Mick’s Story

Each week during “Donate Life Month”, we will be sharing personal stories about organ donation. The stories are submitted by families who have worked closely with Unyts following the death of a loved one. Take a few minutes to read this very hopeful story about the gift of life.

Twenty-one years, yes twenty-one years ago, this month I received the gift of life with a Double Bi-Lateral Lung Transplant. I was born with Cystic Fibrosis and have had to fight for every breath I took for 36 long years and now I have a new lease on life. My family and I cannot express the importance and immense meaning of the gift my Donor Families have given me. My Transplant has given me my life back, a life with no more pain, a life where I don’t have to fight for every breath I take, a life I live every day to the fullest!

My wife Sara and I are paying it forward, volunteering with UNYTS, Cystic Fibrosis, Transplant Team of Buffalo and WICH’s (Women interested in Cystic Health). Not a day goes by that we don’t promote organ donation.

 I am a true testament that ORGAN DONATION AND TRANSPLANTATION DOES WORK!